Tuesday, September 6, 2011

Unusual Syndrome - Once Asleep, This Girl Sleeps 1 Month

She only got up to eat and drink, then sleep again.

'Princess sleep', that title might be fitting given to Lily Clarke (21) a student from Halesmere, Surrey, England. Because asleep, she even missed a birthday momentum and university exams.

However, not a hobby that kept her in bed. Lily suffered a rare syndrome, Kleine-Levin that could enable it to sleep for a month to sleep. She only got up to eat and drink, then sleep again.

He tried hard to recover. For three years, no fewer than seven different consultants visited. Lily is also inexhaustible undergo medical tests, but the only diagnosis that can be concluded is what her mother had read in the Daily Mail, February 2010.

"After I read the symptoms, I recognize the disease my daughter," said Lily's mother, Adele Clarke (47) told the Daily Mail, Monday, August 15, 2011. "It's comforting to know someone knows the answer to my question."

Mrs Clarke said her daughter's condition was first identified when the family went skiing in November 2007. "Unusually, Lily corpulent silent and kept saying: 'My head feels weird, I did not feel well'. I think she just caught a cold at the time," added Adele,

After skiing, the family went to the restaurant. However, during the feast lasted, Lily slept.

After that, Lily refuses to leave bed for the next 25 days, hardly eating and drinking, she slept 23 hours a day, not resistant to noise and light. "Her face was like glass, without expression. I'm very worried." After that Adele took her daughter to the doctor - who said she might be attacked by a virus. An answer is not convincing.

"Just a few days before Christmas, Lily finally woke up. She could not remember how long she slept, and that she previously felt sick." As someone hit the switch, "said Adele." She was talkative, expressive, emotional, and want to rush meet her friends. "

After that, Lily recovered slightly, she 'only' sleep for one to two weeks. Included in the birthday of the 18th, so her parents were forced to cancel a party that they design.

Doctors suspect Lily suffered from migraine to depression. A consultant neurologist even thought she was suffering from "recurrent episodes of depression '.She was given antidepressant medication and cognitive behavioral therapy.

However, the treatment was futile. In July 2008, Lily went back to sleep longer. She just woke up several hours a day and feel terrified every time up. "Acting like a 4-year-old boy, hugging her teddy, sucking fingers, and cried, thinking she would die.

Repeated episodes of deep sleep. And even managed to enter university, her academic achievement below expectations. Then, in February 2010, Adele reading the Daily Mail article about Louisa Ball, who suffer from sleep disorders, Kleine-Levin syndrome. She then contacted the family of Louisa who suggested she meet with Professor David Nutt of The Chelsea and Westminster Hospital. Physician experts who confirm that Lily's illness. She also knew the disease was incurable, but there are a number of therapies that can improve patient quality of life.

"By talking with the patient family, I know that in the sleep episode length, Lily trapped in the horror, in which everything seems confusing," he said. "Her brain can not process information. When asleep, the dream feels real. Conversely, when awake she was hallucinating and does not feel real."

Together with other parents, Adele is now set up websites www.kls-support.org.uk to collect awareness of this rare syndrome. (Umi)

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